Questionnaire for specialists in clinical pharmacology graduated from 2016 onwards

Description

Privacy notice for the "Questionnaire for specialists in clinical pharmacology graduated from 2016 onwards" survey study.

Register maintained by

University of Helsinki

PL4 (Yliopistonkatu 3), 00014 University of Helsinki

The contact person in the issues concerning the register

MD Laura Aurinsalo

laura.aurinsalo@helsinki.fi

Name of register

Questionnaire for specialists in clinical pharmacology

The purpose of handling the personal information

In “Questionnaire for specialists in clinical pharmacology graduated from 2016 onwards" research personal data may be processed.

In this questionnaire, the filling of any personal data (e.g. name, email address, birthday etc.) is prohibited in the instructions of the questionnaire. However, as some background information collected such as age group and gender can be considered to be personal data and as there are some free-form text fields, personal data may be included in the answers although this is prohibited. The purpose of this privacy notice is to provide information how this miscellaneous personal data will be processed. All information collected is meant to be unidentifiable and participation in this survey is totally voluntary without any financial incentives. Subgroups of the study participants with less than 10 people will not be presented in the article to avoid even indirect identification of any of the participants.

All responses will be handled confidentially and only the researchers will have access to view and analyze the data. The research results will be published in a way that it is highly unlikely that an individual respondent can be identified.

Contents of register

Register contains all answers completed on the online form "Questionnaire for specialists in clinical pharmacology graduated from 2016 onwards". No sensitive personal data is expected to be filled as the questions do not cover topics related to ethnic origin, political opinions, religious conviction or health status. The legal basis for processing personal data is task carried out in public interest: scientific or historical research or statistics (Article 6(1 e) of the GDPR and Article 4(3) of the Data Protection Act).

The duration of the data processing is determined by article publishing as the data processing ends when the article is published.

After the end of the research the data will be retained for the purpose of assessing the reliability of the results of this research without direct identifiers. The material will be stored in the questionnaire platform and Helsinki University Systems for 2 years after the study completion after which the data is erased.

Regular destinations of disclosed data

Any directly identifying personal data is not released from the register as directly identifying personal data (e.g. email addresses, names and age etc. filled to the form although not asked) will be removed from the data before any data transfer takes place.

However, the questionnaire answers can be transferred for the analysis to the following researchers, some of which are located outside EU/EEA, who participate in this project as members of EACPT:

Resident in Clinical Pharmacology, PhD student Laura Aurinsalo
Faculty of Medicine, University of Helsinki, Helsinki, Finland

Specialist in Clinical Pharmacology, assistant professor Ines Potočnjak
Sestre Milosrdnice University Hospital Center, Zagreb, Croatia and
School of Medicine, Catholic University of Croatia, Zagreb, Croatia

Specialist in Clinical Pharmacology Erik Donker
Department of Internal medicine, Amsterdam UMC, Amsterdam, the Netherlands

Specialist in Medical Pharmacology Eda Kubra Sel-Kilic
Faculty of Medicine, Dokuz Eylul University, Izmir, Turkey (outside EU/EEA)

PhD Rossana Roncato
Department of Medicine (DMED), University of Udine, Udine, Italy

MD, PhD Carla Sans-Pola
Hospital Clínic de Barcelona, Barcelona, Spain

MD, PhD Sanita Maleskic Kapo
Medical Faculty, University of Sarajevo, Sarajevo, Bosnia and Herzegovina (outside EU/EEA)

PharmD, PhD Emilie Jouanjus
University of Toulouse and Toulouse University Hospital, Toulouse, France

Specialist in Clinical Pharmacology, PhD student Andrej Belančić
Faculty of Medicine, University of Rijeka, Rijeka, Croatia

MD Gerard Ronda-Roca
Hospital Universitario Puerta de Hierro-Majadahonda, Majadahonda, Spain

MD, PhD Alexandre Gérard
University Hospital of Nice and Université Côte d'Azur, Nice, France

MD, PhD Marc Labriffe
University of Limoges and CHU Limoges, Limoges, France

Protection of the register

The personal data contained in the research material is processed and stored in a secure manner so that only persons who need them can access the data. Data processed in the information systems are protected by username and password. Direct identifications are removed at the analysis stage and erased from the data.

Correction of the data and bringing it into effect

Your rights and derogations from those rights

In order to exercise the rights listed below, please contact the contact person for the research and tell us what rights you wish to exercise.

Your rights as a data subject

We will try to exercise your rights whenever possible. The suitability of your rights is affected, for example, by the legal basis on which your personal data is processed. We always assess the validity of the rights on a case-by-case basis. The contact person for the research will help you to implement your rights and will tell you about their applicability.

Your rights under the GDPR are:

· to know if your data is being processed,
· to access your own data,
· to correct your incorrect and outdated data,
· to delete your data and be forgotten,
· to restrict the processing of your personal data,
· to transfer your data from one controller to another,
· to object to the processing of your data, and
· to not to be subject to automated decision-making.

In scientific research, there may be a deviation from a right, for example, if the execution of your right would endanger the entire research. For example, often it may not be possible to delete all of your data afterwards if they are already collected and included in the research, but this does not affect your right to suspend participation in the research.

More information about your rights in different situations can be found on the website of the Office of the Data Protection Ombudsman: https://tietosuoja.fi/en/what-rights-do-data-subjects-have-in-different-situations.

Other rights conserning the personal information handling

If you feel that your personal data has been processed incorrectly, you can always contact the data protection officer of the data controller, who can be contacted via the email address tietosuoja@helsinki.fi

You also have the right to lodge a complaint with the supervisory authority, i.e. the Office of the Data Protection Ombudsman, if you consider that the processing of your personal data has been in breach of the applicable data protection legislation.

Contact details of the Office of the Data Protection Ombudsman:
Office of the Data Protection Ombudsman
https://tietosuoja.fi/ilmoitus-tietosuojavaltuutetulle
Visiting address: Lintulahdenkuja 4, 00530 Helsinki
Postal address: P.O. Box 800, 00531 Helsinki
Switchboard: 029 56 66700
E-mail: tietosuoja@om.fi